Here is their summary of recent National Institute of Deafness and Communication Disorders (NIDCD) webinar, which was last updated on April 7th. Despite receiving evidence-backed criticism of their misrepresentation of non-speaking individuals with autism and their platforming of facilitated communication, they continue to:
- Advocate for " engag[ing] non-speaking individuals... as collaborators at all research stages, including conceptualizing, planning, implementing, interpreting, and disseminating research."*
- Link to a highly-flawed eye-tracking study that purports to show evidence of authorship in a variant of FC that is known as Spelling to Communicate and that has been used with the lead author's daughter.**
- Link to a movie that platforms non-speaking individuals with autism who use FC and that was produced by the FC-promoting organization CommunicationFirst, whose executive director is the wife of the lead author of the eye-tracking study.
*Given that the receptive language skills of non-speakers with autism are highly limited (unless we expand "non-speaking" to include those who merely prefer not to speak), this pipedream could only be realized through the kind of pretend engagement made possible by facilitated communication.
**A quote from the lead author, Vikram Jaswal, appears in this excerpt from the above-linked Washington Post article:
"When Helen Keller first learned to communicate, no one believed her,” said Vikram Jaswal, a University of Virginia psychologist who has an elementary-aged daughter with autism who he said is learning to spell to communicate."
There appear to be some powerful people at the NIH with a vested interest in promoting facilitated communication at taxpayer expense--no matter the terrible costs to some of our most vulnerable citizens.
No comments:
Post a Comment